My Rare Condition Took My Hair & Teeth | BORN DIFFERENT

246 views Apr 22, 2025
publisher-humix

Truly

Verified Humix Creator Badge

AN 18-YEAR-OLD who was bullied over her rare genetic condition - that severely affects her appearance - has silenced her critics by embracing her disorder on social media. Hannah, from Mirfield, UK, was born with Hay-Wells syndrome, also known as Ectodermal Dysplasia, - a condition that has left her hair, teeth, and skin undeveloped. Hannah, who is one of only eight people in the UK and 30 world-wide known to have this disorder, decided to embrace it and is on a journey to become a disabled model. She also started posting videos of her on TikTok and Instagram to raise awareness of her condition and help other people with Hay-Wells syndrome. Follow more of Hannah's story: https://www.instagram.com/hannahharpin/

#Discrimination & Identity Relations
#Genetic Disorders
#Human Rights & Liberties